Midnight thoughts, family problems

I’m sitting here thinking tonight, maybe for the good, maybe for the bad. It has been just over 3 months since I have spoken to my mom, aside from the “Happy Thanksgiving. I love you” text and “Merry Christmas from the both of us. Love you.” text that I received. I replied to the Thanksgiving text and the conversation went no further. So for that I did not reply to the Christmas text. I feel deeply that if someone wants a relationship with you, they will not allow the only time they communicate with you to be a holiday, especially a parent. I mean it’s my MOM! She was my best friend. What happened to that?

Since my mom deactivated her facebook and her wife “M” blocked my husband and I on facebook, I have completely lost touch with her life. Mind you they did this before I had even expressed any feelings to them about their relationship or about M. (I have no problem with same sex marriage, it is strictly the way M treats my mom. I grew up in a very stable same sex home with a woman my mom was with for 14+years). I heard through the grape vine that she’s on vacation traveling in Florida right now. Oh how lovely. I can’t help but wonder if it’s going as shitty as the vacation my husband and I went on with them in September.

I spoke to my mom’s best friend, or former best friend.. because my mom won’t talk to her anymore since M is in the picture. She said she’s tried to contact my mom to see how she’s doing and told her she misses her. No reply. It infuriates me, that my mom’s friend that has been there since I was born (20 something years), is getting pushed away just as I am. I know my mom. She is the type of person that can walk away from someone and never talk to them again. When she’s done, she’s done. But her own daughter and BEST friend. Really!? I would like to think that if I reached out to her she would respond but I just don’t know anymore. I’ve never went a week without hearing from my mom let alone 3 months. Granted I was the one that lost it on the phone and hung up, I truthfully had every right to do so. I simply wanted a one on one conversation with my mom in private and she could not respect me enough to do that. She pushed for all of these things to come out but once they did, they did not want to hear what I had to say really. In a way, I feel like this is what M wanted. She wanted us to fight and sever our relationship so she could once again control every aspect of my mom’s life.

M wanted to agree to disagree. Well I can’t do that because of the person I strongly believe that she is. I can’t just brush it all aside and act like what I feel is not valid just to make everyone happy. That’s not me. She wants to say this all is a big misunderstanding but it’s not. I understand exactly the way she is and so does she. She admitted that she has these issues of acting out and being rude and nasty to people. Well I’m sorry, but why would I put myself in a situation for someone to put myself and others down. I refuse. So does this mean I can’t have a relationship with my mom because I don’t want to be around M? I would hope not, but that’s the way it seems. I could put aside my differences to do a family get together with all of my family but at this point I would not go to dinner with just them and my husband I. I tried for nearly a year to see the good in M, to look past all of these things that bothered me but sometimes you get to that point where you can’t be fake and you have to face the reality. So this is the reality.

I went through this with my father but slightly different. He was absent for most of my childhood and for 4 years while I was very young I did not hear from him at all. Just recently we went 3 years without seeing each other and minimal communication. Is he a bad guy? No. He was an alcoholic and just not good at being a “parent”. I’ve accepted that. It took me many years to accept that and it actually started with my marriage. I realized, that I was starting my own life and family and what’s done is done. If you want to be here, great. If you don’t, I have my own life now. In a way I was prepped my whole life for this very thing. But I never expected it from my mom. She wasn’t that person to let me down or turn her back. Now, I sit here questioning her… and asking what makes her any better than my father at this point? The very thing she ridiculed my father for, turning his back on me, she’s now doing… because of.. someone else? Seriously?

 

Kicked When You’re Already Down

One week until my hysterectomy, I had a huge blow out with “Step” Father-in-law. The problem lies with the things he has been saying to my much younger brother and sister-in-law. My husband and I treat them as if they are our own children. Take them to do fun, exciting, things and try to spend as much time with them as we can. But I learned over dinner tonight from my 7yr old BIL that my FIL is telling them that I don’t work and that I’m lazy and sit on my ass. (Mind you he is on disability but physically ABLE TO WORK, it’s an injury to his arm/shoulder.) No, I’m not able to work everyday due to the physical pain I have BUT regardless of me going to work or not I take care of all of the house work and our 5 animals. Husband does most outside housework. I am not lazy. My Father-in-law on the other hand thinks that he’s the King of his house and does not need to help with their 2 kids, nor does he need to do ANY of the housework including: vacuuming, dishes, cooking. laundry, cleaning, or bathing their 4 animals. He expects to be served and the woman (who DOES WORK TOO) to do everything for him while he sleeps all day, goes out when he wants to, and buys and smoke pot when he pleases. To me THAT’S lazy.

The part that bothers me is that this is the second time he has told the kids something bad about me (that I know of). They are our world. When I confronted him, he went and beat and yelled at my 7yr old BIL. He’s getting punished for something his father did. Makes lot of sense right? NOT!

He continued to tell me I am no longer to step foot in their house again, mind you it’s not his house…. ha. My mother-in-law was crying and apologized to me. But this comes just one month after I made amends with some prior things they did to us, I’m left with this. I don’t deserve to be made out like such a bad person when I do more for them and with them than he ever will. It hurts. I don’t care what he thinks of me, everyone is entitled to an opinion, but to tell the kids these things and paint me in a negative way. They don’t understand. I wasn’t raised this way. I was raised with respect. I’m at a loss of what to do now. I’m so angry and upset especially that my BIL was punished for something that wasn’t his fault. I’m not the “bite your tongue” type. What’s wrong is wrong. What’s right is right and I refuse to be disrespected in such a way especially by a man. (I’ve been verbally and physically abused by men in the past.)

I need to deal with this, but I feel like living here, away from my family, I just keep getting kicked when I’m already down, constantly.

My poem of Change

I drive around these old dusty roads
Pitch black with only the light of the moon
My mind is somewhere off in space
How did I even make it home tonight?

Every twist and every turn
Is burned into my memory
As the music plays
I relive the past.

I remember the first time, the first time
I drove down this old road
Now all I want
Is to just pick up and leave
Why can’t it be that easy?

A black night
A blue day
Around here
It’s all the same.

Listening to the music as it plays
Although it reflects
Many darker days,
I find truth in it
In so many ways.

“Through the eye
Of the storm
You are never alone
Even through, the shadows
You are never alone”

I’m so close
To the eye of my storm
Down these old back roads
Just to mourn.

My loss,
My strength
The lesson,
The gain
As I seek change
I will always
Grow through the pain.

(Lyrics by Killswitch Engage)
Poem by yours truly.
xoxo

Lost and haven’t been found…

Today I’m really struggling..

Have you ever felt like no one understands you? Or they really don’t care about you? That’s pretty much it for me. I’m not much for pretending to like people when I don’t or giving excuses all the time. And I really feel like it’s just me and absolutely no one gets me. Sometimes I want to just close up and not let anyone in. People ‘Act’ like they care but then ignore me when I decide to open up and talk about what is going on.

Truth is: I’m complicated. VERY complicated. I have experienced far more health issues, loss, and defeat than most 22 year olds ever will. I’m DIFFERENT. My mind doesn’t think about partying, I think about what am I going to do now? Where do I go from here? I don’t work at a job that I like. I’m having a hysterectomy and will never have biological children. I’m in debt due to my medical issues. I don’t like where I live. On top of it all no one understands me. Yes this is all the negative. But I feel defeated. After 5 years of trying for a baby.. and now I’m left worse than when I started. I looked up adoption and it’s going to be $20,000+ to adopt a baby. I don’t have that kind of money, I’ve never had that kind of money. Why does everything have to come with a price? Why can’t it come natural? I’ve worked so hard and nothing has gotten easier. I’m in so much pain today… I tell my friend and I get no reply. Maybe she’s tired of hearing me say it. I know I’m tired of feeling it. I need someone to decode my thoughts and tell me what I need to do.

I love being different and realize that most people couldn’t go through what I’m going through but I want to look forward to every day, not be counting down the minutes for it to end. I hurt more than ever… and it’s just me inside of this shell trying to escape.

My Invisible Illness-You May Not Know

30 Things About My Invisible Illness You May Not Know

1. The illness I live with is: Endometriosis/PCOS/Infertility
2. I was diagnosed with it in the year: 2013
3. But I had symptoms since: 2012
4. The biggest adjustment I’ve had to make is: Never having children & living with pain EVERYDAY of my life.
5. Most people assume: I exaggerate/fake it.
6. The hardest part about mornings are: Moving around/Showering/Getting dressed with severe pain.
7. My favorite medical TV show is: The Doctors
8. A gadget I couldn’t live without is: Phone
9. The hardest part about nights are: Trying to lay down in bed when my body hurts so badly from the current day.
10. Each day I take 3+ pills & vitamins.
11. Regarding alternative treatments I:  have tried Fertility treatments, Surgeries, Birth Control, Lupron, Herbal Meds and they did not work. I’m contemplating a hysterectomy that will definitely help.
12. If I had to choose between an invisible illness or visible I would choose: Not sure but I think people would better understand an illness that was more visible.
13. Regarding working and career: It’s nearly impossible. I hardly make it through the day, the days that I am able to actually work.
14. People would be surprised to know: that I have spent 6+ THOUSAND Dollars on trying to conceive a baby and IVF would cost me an additional $15,000 per try.
15. The hardest thing to accept about my new reality has been: I will never have children.
16. Something I never thought I could do with my illness that I did was: make it through the day.
17. The commercials about my illness: depict barbed wire wrapped around my abdomen. Pretty accurate.
18. Something I really miss doing since I was diagnosed is: having a sexual relationship with my husband.
19. It was really hard to have to give up: having a family. No one will ever understand that loss.
20. A new hobby I have taken up since my diagnosis is: Blogging.
21. If I could have one day of feeling normal again I would:  try to get pregnant.
22. My illness has taught me: to be thankful for everything that I do have in my life.
23. Want to know a secret? One thing people say that gets under my skin is: I know someone who got pregnant with what you have, it’s not impossible. You’re still young you have many years to get pregnant. (NO I don’t have many years and NO it’s NOT that easy for EVERYONE to get pregnant. My disease is very severe.)
24. But I love it when people: try to understand and don’t judge/attack me for the truth of my disease.
25. My favorite motto, scripture, quote that gets me through tough times is: Never Give Up. When we long for life without difficulties, remind us that oaks grow strong in contrary winds and diamonds are made under pressure.
26. When someone is diagnosed I’d like to tell them: It’s not going to be easy but don’t give up.
27. Something that has surprised me about living with an illness is: how quickly people/friends/family will judge you and how people think they get it when in fact they have no idea.
28. The nicest thing someone did for me when I wasn’t feeling well was: My husband listens to me, rubs me when I’m sore, helps pick up the house and takes care of the animals when I can’t.
29. I’m involved with Invisible Illness Week because: I want people to be more aware of Endometriosis and how life altering it really is.
30. The fact that you read this list makes me feel: good.

Imagine This

Here I am 21 years old. Dr says, “From your diagnosis you may never have kids without fertility treatments. We can try Intrauterine Insemination (IUI) or Invitro Fertilization (IVF) but it’s very expensive and there are certainly NO guarantees that it will work.” Just imagine this for a moment.

All of these thoughts in my head, how could this be, how could my dreams be crushed in an instant, why me?

We spent several thousand dollars and dug ourselves into debt. Why? Because we were chasing our dream. Did it work? No. Although we did not try IVF because that is 10s of thousands of dollars and on top of our current treatment debt we are in no way able to dig further. But the chances of it working? UP TO a 40% chance. MAYBE. If you’re lucky. On top of that, could my body handle it? Treatments make my endo worse so chances are, no I couldn’t handle it.

But just take a minute and put yourself into my shoes. How would you feel if this news came to you after 4 years of trying to conceive.

Yes, Miracles happen everyday; however I can’t live my life everyday expecting a miracle to happen. So here I am almost 22years old honestly thinking about a hysterectomy. I want to close this chapter. I don’t want to continue to live with a what if or maybe a miracle will happen. Because frankly that f*cks with my head and emotions beyond belief.

I was asked the other day point blank, “So right now in this moment do you have any chance of getting pregnant – is there anything that they can do or you can take that will work?” This really made me think and made things much clearer for myself. The answer is no. There are no true treatments for endo. Fertility treatments did not work. There is nothing that they can do. But at 21 I should not have to face this. I should not have to feel like I have failed as a woman. Or be deprived of what many women around me can do so easily.

This happened to me because I’m supposed to be able to handle this and maybe you, the person that is reading this or that girl who is 8 weeks pregnant with her 2nd child, couldn’t.

Don’t get me wrong I am extremely grateful for the life that I have been given. I have an amazing husband who busts his ass everyday to put food on the table and take care of me when I am hurting beyond words. My mom is one of my biggest supporters. I have been inspired by my Aunt who has been diagnosed with cancer, to keep on fighting. And my animals keep me smiling day in and day out.

But please don’t judge me, please try to understand. I have a disease that is incurable and most days my body hates me. I’m grieving the loss of having children. I have my ups and downs. Some days I want to talk about it, other days I don’t want anyone even mentioning it. Naturally, I’m filled with anger, guilt, jealousy, sadness, and loss. But I’m working on it. I’m working on being a better me. I don’t want anyone feeling sorry for me, I just want you to be aware.

Unless you are faced with this you may never truly understand but atleast you can try.

Just imagine this and walk in my shoes.

 

xoxo