Infertility with Endometriosis: Lupron & Daily Living

In 2012, my husband (H, then 21yrs old) and I (then 19yrs old) married only to find out our chances of ever starting a family were slim. I was diagnosed with Endometriosis and PCOS. I went through 2 surgeries, multiple Drs and fertility treatments such as IUI with Clomid and HCG shots. It didn’t work.

I was then recommended Lupron which, in my opinion, is an awful shot that you receive once a month for 6 months. It has very bad side effects, short and long term like menopausal conditions, osteoporosis, paralysis, and even death. There have been lawsuits against the medication because the pharmaceutical companies are not releasing all the possible serious side effects and Drs are being paid off to recommend Lupron. My Dr never once explained anything about it to me other than menopausal side effects. Also, Lupron does NOT eliminate endometriosis it just, more or less, stops it from progressing any further and without a menstrual cycle it’s not thriving.

So, you have to weigh the pros and cons. For me, my menstrual cycle started back up during treatment and the pain turned for the worse; Lupron was a disaster. I gained 20lbs, had horrible hot flashes, shortness of breath,  extremely bad nightmares, and the pain never stopped for me. After my 4th shot, I stopped it all together and I am now waiting to go see a NEW Dr for another opinion after we get back from vacation in September!

What I did decide to do though is see my Primary Care Physician (PCP). Yesterday, I met with my PCP and finally asked for what I have been holding out on for 3 years. Pain killers. I am now at my wits end and am hardly able to work, do house chores or anything that isn’t laying on the couch with a heating pad. I am now 21 and H is 23 and we want to be able to be active and do fun things especially since we cannot have kids, we want to ‘Live Life to the Fullest’.

I have now been prescribed Vicodin for pain and Elavil for sleep/depression/pain. PCP also is referring me to a neurologist because my endo is on the ligaments of my right leg causing nerve pain from mid back all the way down my right leg to my toes. I was also in a car accident in 2011 that has played a big roll in this specific pain area for me. For now, I just have to wait and see what happens while doing  the best I can.